Why should we care about rare disease?

*THIS EVENT HAS NOW PAST*

In this NHIP Lightning Talk, delegates heard about the importance of Newcastle’s unique approach to research and care for ‘rare disease’ as a discipline. Speakers shared plans on forging new collaborations with local, regional, national and international actors, to bring about meaningful change for our rare disease patient populations.

Presenting at this event were:

• David Jones OBE,  Professor of Liver Immunology at Newcastle University and a Honorary Consultant Hepatologist with the Newcastle upon Tyne Hospitals NHS Foundation Trust.
• Victoria Hedley,  Rare Disease Policy Manager at Newcastle University.

Watch a recording of the event here.