The importance of Rare Disease is increasingly being appreciated by the NHS, industry, research funders, policy makers and others. COVID-19 and its impact on the management of patients with chronic disease delivered by hospital-based specialist clinical services have highlighted a particular need to improve resilience in care delivery in rare disease.

Newcastle University has a long and distinguished history in rare disease research and clinical care. Our vision is to strengthen and enhance Newcastle as a seat of multidisciplinary knowledge and expertise in the field of rare diseases and their impacts on people and society.

The Rare Disease NUCoRE (Newcastle University Centre of Research Excellence) will stimulate interdisciplinary collaborations internally, whilst enhancing the external profile of ‘rare diseases’ as a discipline at Newcastle, attracting greater investment, optimising research outputs, and enhancing impact.

The NUCoRE in rare diseases will bring a new ethos and create new opportunities: Our “360 degree” approach to rare disease and its impacts will represent a completely novel, comprehensive approach.


Young scientist looking through a microscope in a laboratory.
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